Yep.... I got engaged on Christmas eve!! I'm so happy. But it is about time! Me and Chris have officially been a couple since January 05.... 5 tears!.... you can probably guess my answer was " What took you so bloody long!!"
Awww it was sooooo sweet how Chris proposed to me :) We went out to a lovely little pub in the countyside, ordered our food and Chris gave me my Christmas card... on the front it said "To my Fiancée" and inside was a beautiful verse and at the bottom he had written "Will you marry me?" Then he gave me my gorgeous diamond ring :-D I just cried, then Liam cried and then Chris cried. How embarrassing in the pub! haha No-one really saw... I don't think!
It really was the best Christmas present I've ever had!
It'll probably take us another 5 years before we set a date LOL
Merry Christmas! And here's to a fab 2010!!
Monday 28 December 2009
Monday 30 November 2009
My opinion on radical ideas
While I am intrigued and interested in CCSVI I will still remain sceptical while it is in the trial proses, I understand these trials must be done and until we have a firm reason why we have MS they need to and always must go on.
But until then I will stick with MS being a neurological condition.
So many theories have come up about MS and what treatment is the best way to go since I have been diagnosed (5 years) They have been and gone in that time. So this is why I will remain sceptical. I will not put myself forward for stem cell or for CCSVI I will not be a guinea pig for these radical treatments when not enough is known about them. This of course is my own opinion but I do feel like I should speak out. I know some will disagree and that is how it should be, without people having different opinions we will never get to the conclusion of what causes this debilitating, life changing disease.
Much love xox
But until then I will stick with MS being a neurological condition.
So many theories have come up about MS and what treatment is the best way to go since I have been diagnosed (5 years) They have been and gone in that time. So this is why I will remain sceptical. I will not put myself forward for stem cell or for CCSVI I will not be a guinea pig for these radical treatments when not enough is known about them. This of course is my own opinion but I do feel like I should speak out. I know some will disagree and that is how it should be, without people having different opinions we will never get to the conclusion of what causes this debilitating, life changing disease.
Much love xox
Sunday 22 November 2009
DR Chris talks about LDN
Please watch this video and pass it on... Thank you!!!
http://www.youtube.com/watch?v=CVpjsDK0LPA
http://www.youtube.com/watch?v=CVpjsDK0LPA
LDN 3 days and progress!
It's been 3 days now and I wasn't expecting any changes yet... I am on the lowest dose of 1mg for this first month.
Like I said before they only thing I have noticed is vivid memorable dreams...which seem to be getting less vivid, I might add.
So I was standing in church today with my eyes closed praying and suddenly thought.... " I'm standing up un-aided!" (Usually I have to grab hold of the chair in front of me or at least peak to see if I'm level) But No. not this time! I can actually stand balanced with my eyes closed on my own! I can't tell you the last time I was able to do that since MS and before LDN!
Wow... I'm so happy!.... progress already and only 3 days on a low dose.... Please trial this! I can see the benefits for myself... we need this!
Thought I'd keep you all updated :)
Until next time
God bless
Like I said before they only thing I have noticed is vivid memorable dreams...which seem to be getting less vivid, I might add.
So I was standing in church today with my eyes closed praying and suddenly thought.... " I'm standing up un-aided!" (Usually I have to grab hold of the chair in front of me or at least peak to see if I'm level) But No. not this time! I can actually stand balanced with my eyes closed on my own! I can't tell you the last time I was able to do that since MS and before LDN!
Wow... I'm so happy!.... progress already and only 3 days on a low dose.... Please trial this! I can see the benefits for myself... we need this!
Thought I'd keep you all updated :)
Until next time
God bless
Thursday 19 November 2009
Day 1 of my LDN journey
... Or as I'm going to call it OL Operation LDN.
I took my first does (1mg for 1 month) last night before I went to bed. It is best to take LDN at night because that is when your body is replacing T-cells ( T- cells are what make you feel well! )
I was actually a bit scared before I took my dose... I don't know if this was because of all the anticipation that I had built up over the past couple of months trying to get LDN prescribed for me. I guess I have so much riding on this that I'm scared it won't work for me. Deep down I know my fears will be unfounded, even so ... I was nervous. I didn't expect that!
Like I expected I had crazy dreams, but they weren't as crazy as the dreams I had when I used 24 hour nicotine patches. Now they were crazy dreams!! I was convinced, one night that I had seen this huge bug with hundreds of legs crawl up my bedroom wall and on to my ceiling... I even got up and looked for it! So nothing like that... yet lol
According to other people's experiences, these memorable dreams only last a few weeks until my body is used to the medication... I don't know yet about whether increasing my dose will bring them back for a few weeks again... I'll have to wait and see.
I am now waiting on the recurrence of old lesions rearing their ugly head, again in other people experience this happens. But again only for a couple of weeks. SO... yeah I'm scared about that but this is a means to an end and I know it will be worth it because the chances of me getting new lesions while on LDN are few.
Anyway enough for now... Don't worry I will updating regularly on my progress.
Drug companies won't trial LDN but I will!
x
I took my first does (1mg for 1 month) last night before I went to bed. It is best to take LDN at night because that is when your body is replacing T-cells ( T- cells are what make you feel well! )
I was actually a bit scared before I took my dose... I don't know if this was because of all the anticipation that I had built up over the past couple of months trying to get LDN prescribed for me. I guess I have so much riding on this that I'm scared it won't work for me. Deep down I know my fears will be unfounded, even so ... I was nervous. I didn't expect that!
Like I expected I had crazy dreams, but they weren't as crazy as the dreams I had when I used 24 hour nicotine patches. Now they were crazy dreams!! I was convinced, one night that I had seen this huge bug with hundreds of legs crawl up my bedroom wall and on to my ceiling... I even got up and looked for it! So nothing like that... yet lol
According to other people's experiences, these memorable dreams only last a few weeks until my body is used to the medication... I don't know yet about whether increasing my dose will bring them back for a few weeks again... I'll have to wait and see.
I am now waiting on the recurrence of old lesions rearing their ugly head, again in other people experience this happens. But again only for a couple of weeks. SO... yeah I'm scared about that but this is a means to an end and I know it will be worth it because the chances of me getting new lesions while on LDN are few.
Anyway enough for now... Don't worry I will updating regularly on my progress.
Drug companies won't trial LDN but I will!
x
Friday 13 November 2009
UPDATE
Hi guys! Sorry I've not updated for a looong time!
I'm doing okay... I've had a couple MS moments through out the past few months. Ergh! L'Hermitte's is the worst. To put it in layman's terms it feels like an electric shock running down your body every time you bend your neck forward. If I could have plugged electrical items into myself then I'd have saved a fortune in utilities!
I had an update with my neurologist in October where I asked about the drug LDN (low dose naltrexone)I had heard so many good things about this, but I knew that doctors aren't readily prescribing it as it isn't a licensed on the NHS... Okay. I think I better put a link in here as it is so complicated to explain!
Here's the LDN trust's web site... have a read and see what you think... pretty impressive I think you'll agree! http://www.ldnresearchtrust.org/default.asp
So, to cut a long story short, my neauro was very supportive about me wanting to try LDN but he wasn't going to prescribe it, he did say if I could get a doctor to prescribe it then he'd be willing to monitor me.
I went a long to my own GP who hadn't even heard of it... so I gave him lots of information I had found on the net and he researched for me. He got back to me and said he thinks it's a good, positive thing and so cheap that as long as I never sued him (lol) He'd prescribe on the NHS for me!... result!!... I could have kissed him!
So....now going to get my script later today and give Dickson's pharmacy in Glasgow a call (The best and cheapest pharmacy to get your LDN from) and I'll be back keeping you all posted on how it is going for me :)
Until next time
God bless x
I'm doing okay... I've had a couple MS moments through out the past few months. Ergh! L'Hermitte's is the worst. To put it in layman's terms it feels like an electric shock running down your body every time you bend your neck forward. If I could have plugged electrical items into myself then I'd have saved a fortune in utilities!
I had an update with my neurologist in October where I asked about the drug LDN (low dose naltrexone)I had heard so many good things about this, but I knew that doctors aren't readily prescribing it as it isn't a licensed on the NHS... Okay. I think I better put a link in here as it is so complicated to explain!
Here's the LDN trust's web site... have a read and see what you think... pretty impressive I think you'll agree! http://www.ldnresearchtrust.org/default.asp
So, to cut a long story short, my neauro was very supportive about me wanting to try LDN but he wasn't going to prescribe it, he did say if I could get a doctor to prescribe it then he'd be willing to monitor me.
I went a long to my own GP who hadn't even heard of it... so I gave him lots of information I had found on the net and he researched for me. He got back to me and said he thinks it's a good, positive thing and so cheap that as long as I never sued him (lol) He'd prescribe on the NHS for me!... result!!... I could have kissed him!
So....now going to get my script later today and give Dickson's pharmacy in Glasgow a call (The best and cheapest pharmacy to get your LDN from) and I'll be back keeping you all posted on how it is going for me :)
Until next time
God bless x
Sunday 7 June 2009
next door neighbours
I am having a moan. I hope you don't mind... my next door neighbour, or shall we call it my NDN as typing the full words is going to make me moan and bitch even more.
so here we go my NDN is such a moaner!
I think in all fairness I am a relatively good neighbour I don't moan I don't complain I don't play music loud until all hours of the night etc blah blah blah
Now lets face it, we don't get many sunny days in the UK and last weekend was a particularly sunny warm weekend and as it was my moms birthday we decided to have a barbeque... I spent hours making the garden look pretty you know the usual garden jewellery, fairy lights, solar powered path enhancers (whatever they are?!) but the jist is I was pleased so.. ( I'm digressing here a little bit) We get the chiminea (little clay thing that you burn logs in.. pointless I know but even so..)on the go and light the barbeque and start to enjoy our evening, when a voice from nowhere... kind of like the voice from above but without the angel chorus and trumpets and all the clouds parting and rays of light shining down on us, goes a little something like this....
'excuse me, but can you tell me when I am allowed to have my back door open, as that smoke has been going on too long!'
I mean c'mon! if you're going to complain at least come to the bloody front door! and not hide in your bedroom shouting through the window! aaarrrrggghhh!
This is coming from the woman who a couple of months ago came round about tea time and knocked the front door and said and this is verbatim.... 'I hope you don't mind me coming round, but would you mind shutting your kitchen draw a bit quieter please? as I have a migraine and it's echoing all through my house'
I was so shocked I just said 'erm... yeah of course, sorry!' Can you believe that stupid reply! you know after you have had these things happen, you lie in bed at night replaying it, and you come up with the best come backs ever! but no it had passed so I thought of what I could say to her and I felt like going round to hers and saying 'erm I hope you don't mind me coming round, but it's 1 am and I can hear you breathing and I am trying to sleep, would you mind just stopping for tonight thank you very much' But I refrained, maybe next time!
Well getting that off my chest has gone some way in helping me calm down a bit. I think my NDN needs to learn to live and let live, if not that then move into a log cabin 1000 miles away from the nearest town!
G
so here we go my NDN is such a moaner!
I think in all fairness I am a relatively good neighbour I don't moan I don't complain I don't play music loud until all hours of the night etc blah blah blah
Now lets face it, we don't get many sunny days in the UK and last weekend was a particularly sunny warm weekend and as it was my moms birthday we decided to have a barbeque... I spent hours making the garden look pretty you know the usual garden jewellery, fairy lights, solar powered path enhancers (whatever they are?!) but the jist is I was pleased so.. ( I'm digressing here a little bit) We get the chiminea (little clay thing that you burn logs in.. pointless I know but even so..)on the go and light the barbeque and start to enjoy our evening, when a voice from nowhere... kind of like the voice from above but without the angel chorus and trumpets and all the clouds parting and rays of light shining down on us, goes a little something like this....
'excuse me, but can you tell me when I am allowed to have my back door open, as that smoke has been going on too long!'
I mean c'mon! if you're going to complain at least come to the bloody front door! and not hide in your bedroom shouting through the window! aaarrrrggghhh!
This is coming from the woman who a couple of months ago came round about tea time and knocked the front door and said and this is verbatim.... 'I hope you don't mind me coming round, but would you mind shutting your kitchen draw a bit quieter please? as I have a migraine and it's echoing all through my house'
I was so shocked I just said 'erm... yeah of course, sorry!' Can you believe that stupid reply! you know after you have had these things happen, you lie in bed at night replaying it, and you come up with the best come backs ever! but no it had passed so I thought of what I could say to her and I felt like going round to hers and saying 'erm I hope you don't mind me coming round, but it's 1 am and I can hear you breathing and I am trying to sleep, would you mind just stopping for tonight thank you very much' But I refrained, maybe next time!
Well getting that off my chest has gone some way in helping me calm down a bit. I think my NDN needs to learn to live and let live, if not that then move into a log cabin 1000 miles away from the nearest town!
G
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